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Health Informatics Journal, Vol. 14, No. 2, 95-111 (2008)
DOI: 10.1177/1081180X08089318

On the importance of intellectual property rights for e-science and the integrated health record

Giuseppina D'Agostino

Osgoode Hall Law School of York University

Chris Hinds

Oxford University Computing Laboratory, Wolfson Building, Parks Rd, Oxford OX1 3QD, UK

Marina Jirotka

Oxford eResearch Centre 7 Keble Road, Oxford OX1 3QG, UK

Charles Meyer

University of Houston

Tina Piper

Centre for Intellectual Property Policy, McGill Faculty of Law 3644 Peel Street, Montreal QC, Canada H3A 1W9, tina.piper{at}mcgill.ca

Mustafizur Rahman

Oxford University OU Begbroke Science Park, Sandy Lane, Yarnton, Kidlington OX5 1PF, UK

David Vaver

Intellectual Property & Information Technology Law, University of Oxford St Peter's College, Oxford OX1 2DL, UK, david.vaver{at}law.ox.ac.uk

An integrated health record (IHR) that enables clinical data to be shared at a national level has profound implications for medical research. Data that have been useful primarily within a single clinic will instead be free to move rapidly around a national network infrastructure. This raises challenges for technologists, clinical practice, and for the governance of these data. This article considers one specific issue that is currently poorly understood: how intellectual property (IP) relates to the sharing of medical data for research on large-scale electronic networks. Based on an understanding of current practices, this article presents recommendations for the governance of IP in an integrated health record.

Key Words: eDiaMoND case study • e-health • integrated health record • intellectual property rights • medical databases


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